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The Latest Breaking News from Epilepsy

The Daily Biotech Pulse: F-Star Therapeutics Buyout, Orphan Drug Tag For VBI's Brain Cancer Vaccine, Xenon's Epilepsy Candidate Shows Promise

Here's a roundup of top developments in the biotech space over the last 24 hours:

Benzinga

Xenon's Epilepsy Candidate Rapidly Reduces Focal Onset Seizure Frequency

Xenon Pharmaceuticals Inc (NASDAQ:XENE) announced new efficacy data supporting the Phase 3 development of XEN1101. XEN1101 rapidly reduced focal onset seizure frequency within one week for all doses compared with placebo. At Week 1, the median percent reduction in monthly focal onset seizure frequency was 55.4% in the 25 mg group, 41.5% (20…

Benzinga

Struggling Scottish man forced to give up pet as he can no longer afford bills

John O'hare suffers from epilepsy and a chronic lung condition that has forced him to shield for the past two years in his flat. He will soon be forced to give up his beloved pet tortoise as bills make it impossible to keep

Edinburgh Live

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Misdiagnosed teenager was told her diabetes was actually epilepsy 'caused by hormones'

One lady has opened up about life with diabetes

Nottingham Post

Lanarkshire golfers help drive foundation to £100k for epilepsy charity

This year's tournament in memory of 11-year-old Natalie Hughes raised more than £13,000.

Daily Record

Addex Stops Parkinson's-Associated Dyskinesia Trial - Read Here Why

Addex Therapeutics Ltd (NASDAQ:ADXN) has terminated the Phase 2b/3 study of dipraglurant for dyskinesia associated with Parkinson's disease (PD-LID) due to the slow recruitment of patients. Data readout from the trial was expected in 1H of 2023. The company attributes this to the consequences of COVID-19-related patient concerns about participation in studies, staffing…

Benzinga

Time in hospital sets back tens of thousands of children's learning each year, but targeted support can help them catch up

NAPLAN scores can tell us about a child’s learning, but can they also help us to support learners who have had a serious injury or a long-term chronic illness like asthma or epilepsy?

The Conversation

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People with epilepsy in ‘urgent need’ of better care, says report

NEW research has revealed people with epilepsy in Scotland are facing declining services and extensive waiting times for specialist care.

The National (Scotland)

Glasgow schoolgirl who suffers up to 300 seizures a day 'robbed of her childhood'

Olivia McCafferty has Doose Syndrome, a very debilitating form of childhood epilepsy. It can cause loss of consciousness, which has seen the eight-year-old suffer serious falls that have left her black and blue.

Glasgow Live

Mum of little Scots girl who suffers 300 seizures a day says daughter 'robbed of childhood'

Schoolgirl Olivia McCafferty, from Glasgow, has been left wheelchair-bound due to her childhood epilepsy.

Daily Record

Mum's call to help 'forgotten children' get easier access to medical cannabis on NHS

Charlotte Caldwell said many families are having to seek private health care to get a prescription

Wales Online

Ease process for accessing medical cannabis, urges mother of boy with epilepsy

Charlotte Caldwell said many families are having to seek private health care to get a prescription.

The Independent UK

Cross-party support for Lanarkshire schoolboy at first Holyrood debate on medical cannabis access but health minister's absence was 'kick in the teeth'

East Kilbride MSP Collette Stevenson and members of the cross-party group on medicinal cannabis called on the Scottish Government to help break down the legal barriers facing desperate parents of children with drug resistant epilepsy.

Daily Record

Epileptic mum accused of being drunk and has purse stolen as she has seizure in street

Rhiain Mort, 37, from Liverpool, has been called "a drunk", told she's "faking it" and once was even mugged, while having an epileptic seizure in the street

Daily Mirror

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Wales Online

Mum left in tears at concert after medic called her a 'liar' due to 'hidden disability'

O2 Academy is investigating the incident

Manchester Evening News

Woman has purse stolen while having a seizure in the street - and is accused of being drunk

"I have been subjected to nasty comments and abusive behaviours when I have had seizures in public, people have even accused me of faking it"

Liverpool Echo

Epileptic mum accused of being drunk and targeted by thieves while having seizure in street

Rhiain Mort said she has received "nasty comments" and abuse from people

Daily Mirror

Woman, 19, found dead in pool just weeks after being diagnosed with fatal condition

Kailah May, described as a "beautiful soul", had recently been diagnosed with epilepsy and was told by doctors she should not swim because it would put her at risk

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Chronicle Live

Agoraphobic burglar who had fatal stroke in Northumberland prison was not monitored by healthcare staff

Darren Davidson, 46, lost his life at HMP Northumberland on June 25 last year

Edinburgh Live

Edinburgh mum fundraising in memory of much-loved daughter who died age 36

Zoe Smith raised around £17,500 for charity throughout her life and was well loved by a variety of organisations across Scotland for her selfless and kind nature.

The Guardian - UK

Death of woman with epilepsy may be re-examined after Diane Stewart case

Exclusive: mother of Emily Whelan hopes tests that helped prove Stewart was murdered may shed light on daughter’s death

Chronicle Live

Little boy's bad dreams turned out to be epilepsy - now he has around 40 seizures a day

Five-year-old Ethan Cavenagh needs protective headwear to support him when he falls

Benzinga

Sanofi To Pay €400K As Compensation For Epilepsy Drug-Related Side Effects

A French court has ordered Sanofi SA (NASDAQ: SNY) to pay more than €400,000 in damages to a French family whose child had autism caused by its epilepsy drug Valproate.

Belfast Live

Family reflect on huge hole in their lives after teenager's sudden death

"There has been a hole in every gathering without him."

Wales Online

Mum puts on brave face for her daughter's wedding after tumour diagnosis the day before

Kelly Doran had a seizure the previous month, but it was put down to childhood epilepsy

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