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The Latest Breaking News from Sickle Cell Disease

Chronic shortage of sickle cell nurses putting patients at risk, damning report warns

Previously, The Independent revealed that only half of healthcare professionals feel they have sufficient tools to manage the long-term damage that sickle cell disease brings.

The Independent UK

UK becomes 1st country to approve gene therapy treatment for sickle cell, thalassemia

Britain’s medicines regulator has authorized the world’s first gene therapy treatment for sickle cell disease, in a move that could offer relief to thousands of people with the crippling disease in the U.K. In a statement on Thursday, the Medicines and Healthcare Regulatory Agency said it had approved Casgevy, the…

The Independent UK

Blood disorder breakthrough as world-first gene therapy given green light

The treatment is the first to be licensed using the gene-editing tool known as Crispr, for which its inventors were awarded the Nobel prize in 2020

The Independent UK

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Casgevy: World-first gene therapy for sickle cell disease approved in UK

Regulator's approval comes three years after scientists won Nobel Prize for inventing the treatment

Evening Standard

World-first gene therapy for inherited blood disorders approved in UK

The treatment is the first to be licensed using the gene-editing tool known as Crispr, for which its inventors were awarded the Nobel prize in 2020.

The Independent UK

A new cure for sickle cell disease may be coming. Health advisers will review it next week

There soon may be a new cure for sickle cell disease that attacks the disorder at its genetic source

The Independent UK

Sickle cell disease can be deadly, and the persistent health inequities facing Black Americans worsen the problem

The pain from a heart attack is so bad that – if you can imagine – it can feel like an elephant sitting on you. Patients with sickle cell disease, a genetic condition affecting the red blood cells, report that this kind of pain begins before their first birthday and…

The Conversation

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Sickle Cell Awareness Month: What is sickle cell disease and how do you know if you have it?

Sickle cell disease affects thousands of people in the UK – here’s what you need to know

The Independent UK

Sickle cell disease is rife in west Africa - a fresh approach is needed to combat it

Sickle cell disease refers to a group of inherited blood disorders with symptoms like anaemia and blocked blood vessels. About 80% of the world’s sickle cell disease cases occur in sub-Saharan Africa. Lack of access to comprehensive healthcare in the region adds to the burden of the disease.

The Conversation

Costs to cut risk of sickle cell disease beyond reach of most in India: Lancet Commission

The costs required to reduce the risk of sickle cell disease are beyond the reach of most individuals in India and sub-Saharan Africa, where the disease is most prevalent, says a new Commission published in The Lancet Haematology journal.

The Hindu

London hospital to investigate impact of sickle cell disease on eyesight

Sickle Eye Project to assess how disease causes visual loss through damage to blood vessels

Evening Standard

PM Modi launches sickle cell anemia eradication mission

Prime Minister Narendra Modi inaugurated the National Sickle Cell Anemia Eradication Mission 2047 in Madhya Pradesh\'s Shahdol, introducing a dedicated portal and presenting a comprehensive guideline for disease management.

The Times of India

Abbott Torpedoes Sickle-Cell Legislation on Juneteenth Weekend

Democratic State Representative Jarvis Johnson called the governor's veto of the Sickle Cell bill "petty, bullshit politics."

Texas Observer

World Sickle Cell Awareness Day observed in Chamarajanagar

Medical experts participating in the World Sickle Cell Awareness Day in Chamarajanagar, on Monday, June 19, called upon the members of the tribal community to voluntarily subject themselves to screening in a bid to eradicate the disease from the country.

The Hindu

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Inverse

This Humble Virus Could Revolutionize How We Treat Genetic Diseases

A new type of gene therapy could be cheaper, safer, and more efficient at treating diseases like muscular dystrophy and sickle cell disease.

Manchester Evening News

Fast-growing illness affects hundreds in region - and causes strokes and organ failure if untreated

Sickle Cell Disease is the country's fastest growing genetic blood disorder and can be fatal - but there is hope

Chronicle Live

NHS lists the 20 most painful health conditions including migraines, arthritis and gout

These conditions may last for a few seconds or a lifetime but all have the potential to cause debilitating pain, with shingles, a slipped disc, and sciatica also on the list

Daily Mirror

Sickle cell disease fears spark awareness drive and urgent appeal for Black blood donors

Some of the most influential Black people in Britain - including Dame Sharon White and Lord Simon Woolley - have joined efforts to raise awareness of the shortage

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The Independent UK

India's stretched health care fails millions in rural areas

Two Indigenous women both have a genetic blood disorder but lead vastly different lives

WEKU

Sickle cell patient's success with gene editing raises hopes and questions

A Mississippi woman's life has been transformed by a treatment for sickle cell disease with the gene-editing technique CRISPR. All her symptoms from a disease once thought incurable have disappeared.

Tribune News Service

Doctors think they’re drunks or addicts. This ‘warrior’ fights so his disease is understood

KANSAS CITY, Mo. -- Kevin Wake has suffered three strokes. He is only 54. The first one taught him how humiliating an emergency room visit can be for Black people living with the blood disorder sickle cell disease.

The Conversation

Somatic genome editing therapies are becoming a reality – but debate over ethics, equitable access and governance continue

Hundreds of experts from around the world gathered at the Francis Crick Institute in London this week for the Third International Summit on Human Genome Editing.

Daily Mirror

Sickle cell patients receiving poor care at NHS hospitals, damning report claims

Brits suffering from sickle cell are suffering such sub-standard treatment in NHS hospitals that they are resisting going in for help despite suffering debilitating pain, a report has claimed

Evening Standard

Sadiq Khan urges BAME Londoners to donate blood

London mayor Sadiq Khan has urged black, Asian and minority ethnic (BAME) people to donate blood, to boost supplies for lifesaving treatments.Mr Khan gave blood himself at City Hall on Tuesday morning in a bid to set to an example for BAME people, who come forward to donate in disproportionately…

The Guardian - UK

Sickle cell disease patients in England feel neglected, report says

NHS accused of providing ‘substandard’ care after study says people have poor hospital experiences that can cause harm

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