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The Latest Breaking News from Sickle Cell Disease

Health chiefs launch review to tackle ‘poor care’ faced by many young sickle cell disease sufferers

It is estimated that around 300 babies are born in the UK with sickle cell disease each year

The Independent UK

Sickle Cell Disease: Symptoms, risks and understanding those living with sickle cell disease

Sickle Cell Disease (SCD) is an inherited blood disorder affecting millions worldwide and significantly burdening India's healthcare system. With over 40,000 newborns estimated to have been born with sickle cell anemia in India in 2010, the country ranks second only to Africa in prevalence. Despite advancements in treatment, many patients,…

The Times of India

Sickle Cell Disease: 5 diet mantras that one must follow

Imagine waking up with the feeling that your body could betray you any time of the day. And, as the day passes, you feel excruciating pain, fatigue, and other debilitating symptoms. While the imagination is harsh, this is a reality to millions of people who are forced to make do…

The Times of India

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How sickle cell disease is a huge burden upon India’s public health

Every year, approximately 150,000 to 200,000 children are born with sickle cell disease in India. India ranks second when it comes to this disease burden and about 50-80 percent of the patients struggle to reach the age of five. According to the Indian Journal of Medical Research, India is home…

The Times of India

‘Life-changing’ drug for sickle cell disease to be offered by NHS in England

Voxelotor, which can help reduce need for blood transfusions, is administered as a daily tablet

The Guardian - UK

New therapies in treatment of sickle cell anemia

Sickle cell anemia is a debilitating genetic condition that affects red blood cells. Traditionally, treatments focused on managing symptoms like pain and preventing complications. But recent years have seen a surge in the development of new therapies that target the underlying causes of the disease.

The Times of India

How subpar treatment options allow sickle cell disease to persist | Explained

Access to healthcare for sickle cell disease in India, including gene-editing technology, raises equity and access concerns.

The Hindu

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Former Patriot Devin McCourty honored with Hero Among Us award during Celtics-Lakers game

The Boston Celtics handed former Patriot Devin McCourty a Hero Among Us Award for his work to fight Sickle Cell Disease during Celtics-Lakers game.

USA Today Sports Media Group

'My beautiful son died after failures in sickle cell treatment. The NHS must improve'

Tyrone Airey, 46, died after being given a fatal dose of morphine at Northwick Park hospital in March 2021. A coroner later ruled that 'neglect' contributed to his death. His mother Lorraine is fighting to ensure no NHS patient ever has to go through the same again.

Evening Standard

Landmark sickle cell drug axed by regulators

Exclusive: Crizanlizumab was hailed as first new drug to be introduced in over 20 years for people living with sickle cell disease

The Independent UK

Over 1 crore people screened under National Sickle Cell Anaemia Elimination Mission

More than 1 crore people have been screened for sickle cell disease under the National Sickle Cell Anaemia Elimination Mission, an official statement issued on Tuesday said. Read further on Dynamite News:

Dynamite News

Sickle cell patient's journey leads to landmark approval of gene-editing treatment

In early December, the Food and Drug Administration approved a gene-editing treatment for sickle cell disease, the first for any illness. One patient helped pave the way.

WEKU

The 10 biggest science stories of 2023 – chosen by scientists

From insight into our human ancestry and breakthroughs on the moon to a flourishing of AI and terrifying new developments in the climate, it was a year of scientific drama

The Guardian - UK

People with blood disorders not eligible for reservation in jobs, says Centre

Centre informs Parliament that people suffering from blood disorders like thalassemia, haemophilia and sickle cell disease are not eligible for reservation in government jobs under the Persons with Disabilities category.

The Hindu

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The Independent UK

Promising new gene therapies for sickle cell are out of reach in countries where they're needed most

New gene therapies promise a cure for sickle cell disease but experts say they are out of reach in places that need them the most

The Guardian - UK

Strokes, terrible pain and early death: can Zambia help beat sickle cell by screening babies?

Early diagnosis and treatment could save lives from the disease, which kills 50% of affected children under five

The Hindu

Game-changer: On approval for gene therapy to treat sickle cell disease and beta thalassemia

Landmark decisions that mark the beginning of gene therapy using the CRISPR-Cas9 tool to treat diseases that could otherwise be cured only through bone marrow transplantation

The Hindu

US approves two gene therapies for sickle cell disease

The U.S. Food and Drug Administration on Friday approved a pair of gene therapies for sickle cell disease, including the first treatment based on the breakthrough CRISPR gene editing technology.

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The Independent UK

Two gene therapies for sickle cell disease approved in US

U.S. regulators have approved two gene therapies for sickle cell disease

WEKU

FDA approves first gene-editing treatment for human illness

The Food and Drug Administration approved two genetic treatments for sickle cell disease, including one that uses gene-editing. The approvals offer hope for patients and signal a new medical era.

The Independent UK

Chronic shortage of sickle cell nurses putting patients at risk, damning report warns

Previously, The Independent revealed that only half of healthcare professionals feel they have sufficient tools to manage the long-term damage that sickle cell disease brings.

The Independent UK

UK becomes 1st country to approve gene therapy treatment for sickle cell, thalassemia

Britain’s medicines regulator has authorized the world’s first gene therapy treatment for sickle cell disease, in a move that could offer relief to thousands of people with the crippling disease in the U.K. In a statement on Thursday, the Medicines and Healthcare Regulatory Agency said it had approved Casgevy, the…

The Independent UK

Blood disorder breakthrough as world-first gene therapy given green light

The treatment is the first to be licensed using the gene-editing tool known as Crispr, for which its inventors were awarded the Nobel prize in 2020

Evening Standard

Casgevy: World-first gene therapy for sickle cell disease approved in UK

Regulator's approval comes three years after scientists won Nobel Prize for inventing the treatment

The Independent UK

World-first gene therapy for inherited blood disorders approved in UK

The treatment is the first to be licensed using the gene-editing tool known as Crispr, for which its inventors were awarded the Nobel prize in 2020.

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