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The Latest Breaking News from Sickle Cell Disease

'My beautiful son died after failures in sickle cell treatment. The NHS must improve'

Tyrone Airey, 46, died after being given a fatal dose of morphine at Northwick Park hospital in March 2021. A coroner later ruled that 'neglect' contributed to his death. His mother Lorraine is fighting to ensure no NHS patient ever has to go through the same again.

Evening Standard

Landmark sickle cell drug axed by regulators

Exclusive: Crizanlizumab was hailed as first new drug to be introduced in over 20 years for people living with sickle cell disease

The Independent UK

Over 1 crore people screened under National Sickle Cell Anaemia Elimination Mission

More than 1 crore people have been screened for sickle cell disease under the National Sickle Cell Anaemia Elimination Mission, an official statement issued on Tuesday said. Read further on Dynamite News:

Dynamite News

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Sickle cell patient's journey leads to landmark approval of gene-editing treatment

In early December, the Food and Drug Administration approved a gene-editing treatment for sickle cell disease, the first for any illness. One patient helped pave the way.

WEKU

The 10 biggest science stories of 2023 – chosen by scientists

From insight into our human ancestry and breakthroughs on the moon to a flourishing of AI and terrifying new developments in the climate, it was a year of scientific drama

The Guardian - UK

People with blood disorders not eligible for reservation in jobs, says Centre

Centre informs Parliament that people suffering from blood disorders like thalassemia, haemophilia and sickle cell disease are not eligible for reservation in government jobs under the Persons with Disabilities category.

The Hindu

Promising new gene therapies for sickle cell are out of reach in countries where they're needed most

New gene therapies promise a cure for sickle cell disease but experts say they are out of reach in places that need them the most

The Independent UK

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Strokes, terrible pain and early death: can Zambia help beat sickle cell by screening babies?

Early diagnosis and treatment could save lives from the disease, which kills 50% of affected children under five

The Guardian - UK

Game-changer: On approval for gene therapy to treat sickle cell disease and beta thalassemia

Landmark decisions that mark the beginning of gene therapy using the CRISPR-Cas9 tool to treat diseases that could otherwise be cured only through bone marrow transplantation

The Hindu

US approves two gene therapies for sickle cell disease

The U.S. Food and Drug Administration on Friday approved a pair of gene therapies for sickle cell disease, including the first treatment based on the breakthrough CRISPR gene editing technology.

The Hindu

Two gene therapies for sickle cell disease approved in US

U.S. regulators have approved two gene therapies for sickle cell disease

The Independent UK

FDA approves first gene-editing treatment for human illness

The Food and Drug Administration approved two genetic treatments for sickle cell disease, including one that uses gene-editing. The approvals offer hope for patients and signal a new medical era.

WEKU

Chronic shortage of sickle cell nurses putting patients at risk, damning report warns

Previously, The Independent revealed that only half of healthcare professionals feel they have sufficient tools to manage the long-term damage that sickle cell disease brings.

The Independent UK

UK becomes 1st country to approve gene therapy treatment for sickle cell, thalassemia

Britain’s medicines regulator has authorized the world’s first gene therapy treatment for sickle cell disease, in a move that could offer relief to thousands of people with the crippling disease in the U.K. In a statement on Thursday, the Medicines and Healthcare Regulatory Agency said it had approved Casgevy, the…

The Independent UK

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The Independent UK

Blood disorder breakthrough as world-first gene therapy given green light

The treatment is the first to be licensed using the gene-editing tool known as Crispr, for which its inventors were awarded the Nobel prize in 2020

Evening Standard

Casgevy: World-first gene therapy for sickle cell disease approved in UK

Regulator's approval comes three years after scientists won Nobel Prize for inventing the treatment

The Independent UK

World-first gene therapy for inherited blood disorders approved in UK

The treatment is the first to be licensed using the gene-editing tool known as Crispr, for which its inventors were awarded the Nobel prize in 2020.

The Independent UK

A new cure for sickle cell disease may be coming. Health advisers will review it next week

There soon may be a new cure for sickle cell disease that attacks the disorder at its genetic source

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The Conversation

Sickle cell disease can be deadly, and the persistent health inequities facing Black Americans worsen the problem

The pain from a heart attack is so bad that – if you can imagine – it can feel like an elephant sitting on you. Patients with sickle cell disease, a genetic condition affecting the red blood cells, report that this kind of pain begins before their first birthday and…

The Independent UK

Sickle Cell Awareness Month: What is sickle cell disease and how do you know if you have it?

Sickle cell disease affects thousands of people in the UK – here’s what you need to know

The Conversation

Sickle cell disease is rife in west Africa - a fresh approach is needed to combat it

Sickle cell disease refers to a group of inherited blood disorders with symptoms like anaemia and blocked blood vessels. About 80% of the world’s sickle cell disease cases occur in sub-Saharan Africa. Lack of access to comprehensive healthcare in the region adds to the burden of the disease.

The Hindu

Costs to cut risk of sickle cell disease beyond reach of most in India: Lancet Commission

The costs required to reduce the risk of sickle cell disease are beyond the reach of most individuals in India and sub-Saharan Africa, where the disease is most prevalent, says a new Commission published in The Lancet Haematology journal.

Evening Standard

London hospital to investigate impact of sickle cell disease on eyesight

Sickle Eye Project to assess how disease causes visual loss through damage to blood vessels

The Times of India

PM Modi launches sickle cell anemia eradication mission

Prime Minister Narendra Modi inaugurated the National Sickle Cell Anemia Eradication Mission 2047 in Madhya Pradesh\'s Shahdol, introducing a dedicated portal and presenting a comprehensive guideline for disease management.

Texas Observer

Abbott Torpedoes Sickle-Cell Legislation on Juneteenth Weekend

Democratic State Representative Jarvis Johnson called the governor's veto of the Sickle Cell bill "petty, bullshit politics."

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