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The Latest Breaking News from Muscular Dystrophy UK

Meet Carmela Chillery-Watson, the UK girl who began fundraising after a rare diagnosis at 4 and became the youngest person ever awarded an MBE at 11

Carmela Chillery-Watson became the youngest MBE recipient at eleven years old. She received the honour for her extensive fundraising and awareness work. This recognition celebrated her dedication to Muscular Dystrophy UK and the disabled community. Carmela's journey began after her diagnosis with a rare muscle-wasting condition at age four. Her…

The Times of India

What is SMA? Key signs to look out for in babies as Jesy Nelson highlights life-changing condition

Pop star Jesy Nelson has campaigned for screening to be rolled out after her twins were diagnosed with the condition

The Independent UK

Charity chief praises Little Mix singer Jesy Nelson for sharing news of twins

Ocean Jade and Story Monroe Nelson-Foster have been diagnosed with a rare genetic condition.

Evening Standard

From analysis to the latest developments in health,
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TV presenter Gabby Logan hails ‘fun’ and ‘important’ BGC Charity Day

She was among the celebrities taking to the trading floor of the financial services company in London on Thursday.

Evening Standard

Girl, 11, becoming youngest ever MBE ‘never thought this would happen’

Carmela Chillery-Watson, who has LMNA congenital muscular dystrophy, is being made an MBE for services to charitable fundraising.

The Independent UK

'It was eye-opening': How a WoW documentary inspired Muscular Dystrophy UK's Liam Quinn to raise money and build community in the haven of videogames

Game On.

PC Gamer

WoW documentary The Remarkable Life of Ibelin lit a fire under Martin Hywood, a charity worker with a similar condition who's raised over £300,000 since his diagnosis

"I don't think you can put a price on what Mats did."

PC Gamer

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'A true, raw, emotional display of what our life is genuinely like'—how a documentary about a WoW player gave a vivid window into the lives of disabled gamers

Empowerment, happiness, and human connection through gaming.

PC Gamer

Girl with muscular dystrophy walks runway at Bristol Fashion Show

Carmela Chillery-Watson, now aged nine, has been appearing at the fashion show since the age of five.

The Independent UK

Nine-year-old with muscular dystrophy to model on runway at Bristol Fashion Show

Carmela Chillery-Watson will take to the catwalk with her walking frame on Sunday.

The Independent UK

Man with muscle-wasting condition completes gruelling Ironman triathlon

Chris Stennett, from Suffolk, said that, within two months of being diagnosed with FSHD, he had decided he ‘wasn’t going to let it hold me back’.

The Independent UK

Man with muscle-wasting condition to take on Ironman triathlon for charity

Chris Stennett is gearing up for Ironman Austria later this month.

The Independent UK

Meet the cash-strapped Brits who face choosing between heating and BREATHING

Sulaiman has so far had just £150 help from the Government – despite charities estimating disabled people are paying £12,000 a year in extra costs

Daily Mirror

Charlie Hodgson says England must win "mind game" to beat France - and pick just one 10

England take on France in a huge Six Nations showdown at Twickenham on Saturday, and Charlie Hodgson has detailed what Steve Borthwick's men must do to claim victory

Daily Mirror

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Glasgow Live

Glaswegians encouraged to brighten up their wardrobe in aid of muscle-wasting charity

Whether it's swapping your school uniform to wear one bright thing or dressing to the nines with your work colleagues - Muscular Dystrophy UK needs your help to raise vital funds.

Daily Mirror

Thousands disconnecting electricity and disabled people rationing ventilator use

The industry term for this situation is “self-disconnection”, and the figures show rises of more than 20% in both electricity and gas self-disconnections from the start of last winter to spring this year

The Independent UK

Girl, 8, given award by Boris Johnson calls him out for breaching Covid rules

Carmela Watson was in Downing Street to receive a Point of Light award for helping to raise over £400,000 for a muscular dystrophy charity

Wales Online

Disabled woman has to be lifted off plane by husband, 66, after airport delays

Suzanne suffered delays twice as assistance failed to turn up at two airports, leaving her stranded

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Daily Record

Heartbroken family pay tribute after death of courageous Stirling man (23)

The family of Arryn Widd - who was diagnosed with Duchenne Muscular Dystrophy as a child - have paid tribute after his unexpected death at the age of just 23.

Daily Record

Scots mum was diagnosed with muscular dystrophy after tripping over stairs

Alexandra Gardyne has Facioscapulohumeral muscular dystrophy and is set to become the centre of an upcoming fundraising event.

Edinburgh Live

Edinburgh mum was diagnosed with muscular dystrophy after tripping on stairs

The 35-year-old mum has organised the event that will showcase a variety of artworks that will be sold in order to raise money for Muscular Dystrophy UK.

Chronicle Live

Blyth mum 'terrified' of heights prepares to leap from plane in honour of 'amazing' son battling progressive disease

George Pegg lives with Duchenne Muscular Dystrophy and his entire family have joined him in raising over £200,000 for research into the condition

Chronicle Live

Sunderland woman wins fight for accessible swing in her local park for nephew with muscular dystrophy

Angela Turnbull has been successful in her year-long campaign

Daily Record

Twin boys with muscular dystrophy set to 'climb' equivalent of Iron Man's Stark Towers

Oscar and Sebastian Spink, 11, were diagnosed with the devastating incurable genetic disorder in 2019.

Daily Record

Wishaw couple raising thousands for charity in hope of winning dream wedding

Natalie Fleming and Sean McCluskey are into the final four of Go Radio’s Dream Wedding competition but in order to win they must raise the most cash for their chosen charity, Muscular Dystrophy UK.

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