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Evening Standard
Evening Standard
World
April Roach

'My hero': Heartwarming moment mother celebrates first steps by son with undiagnosed disability

This is the heartwarming moment a five-year-old boy with an undiagnosed disability took his first independent steps.

Camden Hanson of Woodstock, Georgia, has progressive Cerebellar Atrophy/Ataxia, and normally uses a gait trainer or crutches to get around.

Proud mum Mandy Hanson shared the "incredible" moment Camden took his first steps on his own on Sunday.

She told the Evening Standard: "Everything Camden accomplishes big or small is celebrated but watching him take so many independent steps and feel so confident that he could finally do it was an incredible feeling.

"We are so proud of him and blessed that he is our son. He never ceases to amaze us."

Camden, five took his first steps on June 14 (Mandy Hanson)

The family hopes that after Camden starts kindergarten using his crutches, he will eventually be able to walk around the room using just one of them.

On Twitter Mandy said: "Since we all could use a little happiness in our lives these days. My youngest son (age 5) has progressive cerebellar atrophy and is physically handicapped.

"He also has 10 therapies a week. Today, he finally took independent steps! #Myhero."

Mandy said Camden enjoys dressing up like superheroes and playing with cars.

"He loves being silly and making people laugh," said the mum-of-two.

Mandy said her son, Camden has the biggest smile (Mandy Hanson)

"In his pre-k class this past year, he received the 'Biggest Heart' award out of 22 students because his teacher said that he was always so loving to his teachers and peers."

Despite multiple genetic tests, Camden's condition remains "undiagnosed". He is part of the Undiagnosed Disease Network which will continue to re-run genetic tests to see if any new information surfaces.

Mandy said the family-of-four has been told the because his condition is so rare, he may be the only one identified in the world with this diagnosis.

Camden's condition affects his cerebellum which coordinates voluntary movements such as posture, balance, coordination and speech.

Camden with his parents and older brother Parker (Mandy Hanson)

Mandy said: "As a result, he struggles the most with gross motor skills but because he also has ataxia, fine motor tasks such as eating with a fork, holding a pencil, drawing or cutting on a straight line are all very difficult for him.

"He also goes to speech therapy because cerebellar atrophy causes speech delays and difficulty forming sounds.

"Two years ago, Camden was only able to make sounds and now he is talking in full sentences."

When he was just 20-months-old Camden started physical, speech and occupational therapy.

He also receives intensive Robotics Therapy at children's Healthcare of Atlanta and Hippotherapy.

"It is these therapies with devoted therapists and Cam’s hard work that we believe have attributed to his recent break-through of walking," said Mandy.

She added that during the coronavirus lockdown Camden's therapies moved online but now that restrictions are being eased, he is able to attend in-person therapies at the clinic.

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