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Chronicle Live
Chronicle Live
National
Nicole Goodwin

Christmas light switch on in aid of four-year-old's wheelchair fund

There's a special mission behind the Christmas lights which cover a house in Dumpling Hall this year.

Each light has been fitted with the aim of raising money to buy a four-year-old boy an electric wheelchair after he was diagnosed with spinal muscular atrophy (SMA). The genetic condition makes his muscles weaker and causes problems with movement.

Freddie Tanner-Boyer was diagnosed with the condition at just one-year-old and at 16 months old he started treatment for SMA which has luckily stopped the progression of the disease. But the schoolboy still needs an electric wheelchair as he is unable to walk and currently has to be pushed around in a manual wheelchair.

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Freddie's parents Stephanie, 31, and Antoni, 32, had been worried about how they would find the money for the wheelchair, which costs £14,500. The youngster has just started primary school and his chair limits what he is able to do on a daily basis.

But when Stephanie began talking to the owner of the salon she has been visiting for a year, the dream of providing Freddie with a wheelchair, which will grow with him into his adult life, soon became a possibility.

Stacey Wait, who owns Beauty and the Best salon on Cedar Road, in Fenham, vowed to help the family and for the last 12 weeks has been fundraising to cover the cost of the chair. The dedicated fundraiser and her dad Neil Shield have been planning ways to help raise the funds.

And tonight their latest efforts started with a Christmas light switch on at Neil's home, which Freddie and his family attended this evening.

Stacey said: "Stephanie was sat in the chair around 12 weeks ago getting her hair done and she told me all about little Freddie, how electric wheelchairs aren't available on the NHS and that she was trying to make ends meet and putting money away every month.

"That's when I stepped forward."

Stacey and her dad have done a lot of charity work over the years and decorate their home in Christmas lights each year to raise money for good causes, including mental health charity Mind, which the pair raised money for last Christmas. But this year is dedicated to helping Freddie.

Stephanie said: "I was shocked when she said she was going to fundraise for the chair. Shocked and overwhelmed that someone who is a stranger really would go out of their way to help me and my little boy."

Around £8,000 out of the £14,500 target to provide Freddie with an electric wheelchair has already been raised. Some of the funds were accumulated via a raffle of season tickets donated by Stacey's dad, and a 'name the bear' competition organised by KFC in Cowgate, which raised £800.

Stephanie added: "It's £14,500 to get this chair so it's like buying a car outright. I'm chuffed that we've come so far, we're over halfway there now to getting Freddie the chair, I can't believe it, I'm just so grateful."

Anyone wishing to donate to Freddie's wheels fundraiser can do so via this link.

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