Tom and Rosemary Ryan's story parallels the story of Down syndrome these past 59 years.
Not only has the couple lived the joy, challenge and learning curve that accompanies raising a child with special needs, they've dedicated their lives to pioneering change in governmental support, educational opportunities and societal views.
"A lot has changed over the years," Rosemary said. "We've come a long, long way."
Like many parents of special needs children, love thrust them into the world of advocacy. When there was no preschool for their son, Rosemary started one. When the concept of housing adults with Down syndrome in group homes instead of institutions was proposed, they jumped on board _ landing smack in the center of a national debate and garnering the attention of ABC-TV's "Nightline" with Ted Koppel.
And, now, as their oldest son endures perhaps the cruelest of characteristics often associated with his condition _ accelerated aging _ the Ryans are again at the forefront of the discussion.
Kevin Ryan is 59 but a checkup last spring revealed "he's more like going on 70," Rosemary said. "He's gonna pass us up."
Raising a child with Down syndrome is "perpetual parenthood," Rosemary said, "if you are committed to wanting the best for them."
Now in their 80s, the Ryans, who live at Smith Crossing retirement community, are simultaneously discussing end-of-life care for themselves and for their son.
