A little boy has an incurable disease that leaves him stuck to the floor like glue and unable to get up.
Two-year-old Kylian Gealer is often unable to move a muscle - and left as still as a statue - by a condition which has no cure.
Kylian's mum Jolene Gealer has been told he may have the one-in-a-million disease known as alternating hemiplegia of childhood (AHC) - caused by mutations in the ATP1A3 gene.
It means sufferers will experience repeated attacks which is paralysis of a portion of the body and is described as being like having seven diseases at once - epilepsy, paralysis, cerebral palsy, Parkinson's, ADHD, autism and Alzheimer's.
Jolene, from Bolton, first took Kylian to the doctors when he was suddenly unable to walk on his right leg.
It took a year of tests for the 35-year-old to be told it was likely AHC - which is so rare only one in every one million children worldwide suffer from it.
"I hadn't even heard of it," Jolene said. They told me there was nothing they could do.
"AHC is like having epilepsy, paralysis, cerebral palsy, Parkinsons, ADHD, autism and Alzheimer's all rolled into one."
And it can be a daily struggle.
"I just don't know when Kylian is going to have an episode," mum-of-four Jolene said.
"It is heartbreaking that he is going through this and I can't help him.
"He gets frustrated a lot and lashes it out. It's so hard because there is no cure and no day is the same.
"When he has an episode it is just like all of a sudden he can't walk. He just drags his right leg behind him and struggles to get up."
She added: "He will choke on his food and he keeps forgetting things he has learnt.
"He used to call me mama but now he can only say ma. He acts up a lot because of his ADHD.
"Each day I'm on edge because I don't know if he is going to freeze."
Jolene said she had a traumatic birth with Kylian in August 2018 and felt something was wrong from the start.
"I had to have an induced birth and then he wouldn't wean and didn't stand up until 11 months," she said.
"I knew something wasn't quite right - my mother's instinct was telling me, but the doctor's said everything was OK."
Kylian started to twist his arm inwards and Jolene took him to the doctor.
"They said nothing was wrong but I was still worried about him," she said.
"One day he suddenly stopped walking on one of his legs.
"I was so scared I didn't know what was happening."
It was then that Jolene rushed Kylian to Royal Manchester Children's Hospital and was told Kylian likely had some neurological problems.
It was further testing that suggested the toddler is likely to have AHC.
Kylian has now been referred to St Mary's Hospital in Manchester where specialists have also determined that he has myoclonic seizures.
"It's so hard on him," Jolene said. "I hate to see that my little baby boy is unhappy.
"We are living in hell. Every day is a struggle.
"I just want everything to be OK for my little boy."
