A toddler may never be able to walk or talk after "turning blue" following an emergency c-section.
George Morfitt, two, was born 17 days late and placed in intensive care for almost a fortnight having suffered breathing problems.
He was born with a double squint and suffers from hypertonia, low muscle tone, hypermobility and global development delay.
Hull Live says the youngster has recently developed complications, is unable to sit up or communicate and is still like a six-month-old.
Strangers have even given little George nasty comments on the street.
His 24-year-old mum, Aimee Meggitt, said: "George has been looked at on the bus before and we've had some cruel comments because of his double squint with people saying 'there's one eye looking at you and one eye looking forward'.
"We didn't want to put pictures of him on Facebook because of his eyes, but now we think if people are going to say nasty things about a child, then that's their problem.
"We get asked 'why isn't your child walking?', 'why can't he stand up?' and it's so frustrating as we still have no concrete answers.
"Initially we were nervous when we found out about George's conditions as it is hard to know what the future will be like and we don't know if he will ever walk or talk or even sit up.
"It's awful that we might never hear our child talk and say 'I love you' and I'm seven months pregnant at the moment and we don't know if our baby will be the same, but George is ours and we love him all the same."
Aimee lives in Hull with George and partner Jordan Morfitt, also 24, but the couple say they are still waiting for answers for their son's future progression.
The mother-of-one continued: "There is no routine for George as he stays up all night and doesn't sleep because his conditions make him tired and sleep in the day, so even though he is coming up to three, we are still having to 'sleep when the baby sleeps'.
"We just have to be strong for him and when he looks at us and smiles, we know that we are doing something right. I feel the worst when I'm on my own as I can just be sat on the loo and just burst in to tears, but I have some great support from friends and family."
In order to provide support for other parents who have children with disabilities, Aimee and Jordan have banded together with another Hull couple Jess Beedhan and Jamie Smith to create 'Jams Journey' on Facebook, Twitter and Instagram .
The aim of the group on the social media platforms is to engage with other mums and dads in a similar position so that they do not feel alone, supporting one another online as well as creating coffee mornings for parents and children to meet.
Aimee said: "It's our aim to get as many mums and dads or grandparents aunties uncles involved on the page to get support from what they are going through as well as make friends for our little boys with judgement or shame.
"When you are dealing with what we are still waiting for more answers it can be a very lonely and scary time and we want to be here to reassure other parents".
Find the group by searching for 'Jams Journey' on Facebook, Instagram and Twitter.
