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Daily Record
Daily Record
National
Sarah Ward

Toddler, 2, who had lifesaving brain surgery deteriorates while recovering at Glasgow hospital

The mother of toddler who was the youngest person ever to undergo 'deep brain' surgery says the child's recovery is uncertain - and she is 'getting worse again'.

Little Viktoria Kaftanikaite, aged two years and eight months, is back in her home city of Glasgow after having radical treatment at the Evelina Hospital in London in May.

The tot suffers from a severe condition, dystonia, which causes uncontrollable muscle spasms which effect her ability to breathe - and she was treated with a life-saving procedure known as Deep Brain Simulation (DBS).

Viktoria Kaftanikaite has had electrodes placed deep inside her brain to treat severe, uncontrolled and painful muscle movements.

The procedure is normally only carried out on older children and adults but without it, Viktoria could have died.

However, her family is now keeping an anxious vigil at the Royal Hospital for Children in Glasgow, where she was transferred on June 14.

While specialists say the little girl's operation went as well as could be expected, Viktoria is currently being treated for a possible infection and her condition has deteriorated.

Mum Patrycja Majewska, 26, said: "It's not very good.

Viktoria Kaftanikaite, 2, from Glasgow

"She was OK but now she is getting worse again.

"It's up and down all the time.

"They are giving her antibiotics just in case she has an infection.

"They don't know 100 per cent that she has an infection but they are giving her antibiotics just in case.

"She is awake though.

"It's not normal for this to happen after this type of surgery.

"They have to find a balance between the medication so it's hard because she's a wee one.

"I try to be there every day for two hours but we have another daughter and we've just moved house so I'm having to go myself.

"They say they are happy with the operation but we will see.

"We really don't know anything.

"We don't know how long she will be in hospital."

Patrycja, who is originally from Poland, but now lives in Pollok, with her partner Martinas, 35, and has a six-year-old daughter Dominyka, says it took two-and-a-half years before the condition was diagnosed.

She hopes the surgery will give Viktoria a better quality of life, and completed a first aid course so she knows how to provide emergency care for her daughter in the future.

Surgeons placed electrodes deep inside Viktoria Kaftanikaite's brain

The DBS procedure involves putting a small amount of electricity into the brain through tiny electrodes, which are attached to a battery.

The brain is not surgically opened and instead, a tiny hole is made in the skull.

Patrycja said doctors in Glasgow recommended waiting for the surgery until Viktoria turned three.

But the specialist who performed the surgery in London, Consultant Neurosurgeon Richard Selway, were keen to help the little girl ahead of that time.

She added: "The doctor in London said he was going to take all the risks himself because he wanted to help her and said two-and-a half years was enough.

"They hope that the DBS is going to help the movements she has.

"Her arms and legs wouldn't move normally and she was pushing her head down and her belly up.

"We noticed that from a young age she couldn't hold anything in her hands, such as toys, and had trouble keeping her head up because it was falling from side to side.

"She cannot play, she cannot talk, she cannot eat, she cannot sit.

"She can't do anything by herself.

"She completely depends on others.

"We are just taking it day by day."

The family have set up a fundraiser to help with the cost of Viktoria's rehabilitation.

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