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Manchester Evening News
Manchester Evening News
Health
Rebecca Lockwood & Ellie Kemp

Teen who was misdiagnosed with long-Covid given devastating diagnosis

A teenager who was misdiagnosed with long-Covid was given a heart-breaking diagnosis after making a trip from Crewe to Blackpool for a football tournament. Kane Allcock, 15, started suffering from persistent headaches after he tested positive for Covid on New Year's Eve last year.

The migraines had been linked to the virus after mum Nicki took him to A&E and a local clinic where he was prescribed pain-killing drugs for vertigo. On the Easter Bank Holiday weekend, the family made their way up to Blackpool from Crewe where the budding footballer was due to play a tournament with his teammates at Crewe Alexandra.

When they arrived, Kane was unwell and went straight to bed. The next day, they were told again that he was suffering from post-Covid vertigo. It was then that Nicki "lost her patience" with medical professionals, admitting Kane to hospital overnight for further tests.

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The next day, Kane was diagnosed with acute hydrocephalus - a build-up of pressure on the brain caused by excess cerebrospinal fluid (CSF). Doctors had also found a large tumour and Kane was rushed to Alder Hey Hospital in Liverpool for emergency surgery.

Nicki said Kane had been in "agony" when his headaches became worse and he began being sick and struggled to walk due to dizziness, reports LancsLive. After losing her patience with medical professionals, a brain scan uncovered a large tumour on Kane's brain.

Kane Allcock, 15, was found to have a brain tumour after initially being told his persistent headaches were caused by long Covid (Ronald McDonald House Charities UK)

The youth team player at Crewe Alexandra survived the procedure and has made a full recovery, but Nicki said he was only saved after a nurse realised the severity of his symptoms. She said: “I knew something wasn’t right. Kane was holding his head and rocking in agony. He couldn’t walk properly.

“They did some blood tests and put him on oxygen and IV pain relief. The message I was getting was that he was still just suffering from migraines. But when we were being booked into the assessment ward, I spoke to a nurse who seemed to take us more seriously and I told her I’d noticed a dent at the back of Kane’s head.

“Just two days later, on 19 April, he went into theatre again, this time for a 7.5-hour operation to remove the tumour. Thankfully, Kane’s amazing surgeon, Mr Mallucci, managed to remove it all.” Nicki continued: “We’d travelled to Blackpool on the Thursday before the Easter Bank Holiday weekend, as Kane was due to take part in a tournament with his Crewe FC teammates.

“When we got there, he was unwell and went straight to bed. The next day, we took him to a nearby walk-in centre. They did a full examination and concluded that he may have been suffering from post-Covid vertigo and he was given codeine.”

An MRI scan of Kane's brain found that he had an acute hydrocephalus - a build-up of pressure on the brain caused by excess cerebrospinal fluid (CSF) (Ronald McDonald House Charities UK)

With Kane too unwell to play football, Nicki and her husband Steve took him home and the three went straight to A&E at Leighton Hospital in Crewe. There, the family decided Kane would be admitted for overnight tests.

The following day Kane suffered a seizure and was sent for an MRI scan of his brain. Doctors told Nicki and Steve the results revealed he had an acute hydrocephalus - a build-up of pressure on the brain caused by CSF.

Doctors also found a large tumour and Kane was rushed to Alder Hey Hospital in Liverpool for emergency, life-saving surgery. Mum-of-two, Nicki, said: “Steve and I followed in the car. it was the longest 50 minutes of our lives.

"When we got there, we barely spent any time with Kane before we were asked to sign the consent forms for his surgery. He was quickly taken into theatre for an operation to treat the hydrocephalus.

"Just two days later, on 19 April, he went into theatre again, this time for a 7.5-hour operation to remove the tumour. Thankfully, Kane’s amazing surgeon, Mr Mallucci, managed to remove it all.”

Nicki said more good news followed when the histology report came back confirming the tumour was a low-grade (non-cancerous) pilocytic astrocytoma. Kane was brought back for further surgery in the days following the procedure, before he was given the all-clear.

Kane Allcock with his dad Steve, mum Nicki and brother (Ronald McDonald House Charities UK)

She explained: “Kane was discharged just four days after the operation, but on 25 April, he had a wound leak, which meant another trip back to Alder Hey, where he had a couple of extra stitches added. The wound continued to leak and during a routine follow up appointment on 27 April, it was decided Kane needed to go back into surgery to re-suture the wound.

“It didn’t end there, because they also discovered his hydrocephalus had flared up again and he had to have a spinal drain inserted to fix that. This meant lying flat for five days. The drain was removed on 1 May and Kane was discharged home the following day.”

During both of Kane’s hospital stays, his parents were put up by Ronald McDonald House, which provides free ‘home away from home’ accommodation for families. Nicki said: “Steve and I had planned to bring the campervan up and we would’ve stayed in that, but we were assured there was a bed for us at the House and that we could stay there for as long as we needed to.

“To be staying on the site of the hospital, just a short walk away from Kane, was incredible. The House is amazing and provides a place to call home whilst families are going through the most difficult time of their lives.”

Philippa Bradbury, regional community fundraiser at the charity, said: “It is our pleasure to be able to support families like the Allcocks, helping to ease the financial and emotional burden of having a sick child in hospital."

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