Get all your news in one place.
100’s of premium titles.
One app.
Start reading
Daily Mirror
Daily Mirror
National
Anita Merritt

Musician, 35, with Tourette's told to leave pub garden 'or try and be quiet'

A 35-year-old musician claims he was told to leave a pub if he couldn't control his Tourette's syndrome.

Steve Ley, from Devon, says he was in a pub having a drink with a friend one afternoon when the landlady asked him to 'control' his behaviour because there were children around.

He claims he was told to "try and be quiet" and on his best behaviour and that if he was "bad" he would have to get out.

Steve says he explained he cannot control it because it's a medical condition, and now he wants to educate others too.

He told Plymouth Live he encounters discrimination on a regular basis.

His latest experience has prompted him to post a video on social media calling for people to be better educated about Tourette's syndrome, a condition that causes a person to make involuntary sounds and movements called tics.

Steve claims he was told to try and 'control' his behaviour (Devon Live/BPM Media)

Carpenter Steve, who has chosen not to identify the pub in question, recalled: "It was a beautiful day and I was really happy to be out. I have drunk in there before but the landlady came over and was really rude and patronising to me.

"I was asked to control my Tourette's and to 'try and be quiet and on my best behaviour', and 'if I was bad' I would have to get out.

"I explained I can't control it and that it just comes out. I also pointed out what she was saying was discrimination because I have a medical condition which I can't help.

"She then would not serve me so my friend got me another drink. I was able to stay."

He added: "I don't want to name the pub; I just want to educate people. Killing it with kindness gets you a bit further in life. Children understand it better than adults sometimes.

"It didn't get me down, down, but I thought I would do a video about it and post it on my Facebook page. It has already had 2,000 views.

He has shared his story to try and educate others (Plymouth Live WS)

"It's just a bit demoralising and it shouldn't happen. I seem to have more problems locally than I do anywhere else.

"I know everyone is struggling at the moment and things are difficult, but if you don't know what Tourette's is in this day and age then it's strange.

"I know what people hear can be quite offensive, but it does not mean I should have to leave somewhere. I don't have a switch or a volume button. It's discrimination."

Steve is well-known locally for his music and also for having appeared on television such as BBC3 documentary MisFits Like Us.

He started having symptoms of Tourette's syndrome when he was just six-years-old.

It began with an eye twitch and then it slowly developed into vocal ticks as well.

He recalled: “It got a lot worse when I was at school. The teachers and pupils didn’t really understand what it was so that made it really hard to deal with.

“When I was 11 doctors finally diagnosed me with Tourette's syndrome, but by then I was getting bullied. Being at school was a really tough time for me.”

As Steve got older, having Tourette's never got any easier, however, it was something he had to learn to deal with.

He said: “Having Tourette's can make you feel really isolated and alone. It can make you feel anxious and depressed sometimes, and it’s something that you just can’t escape from. I constantly feel like I have to apologise for it.”

One thing that helps to channel his tics is performing on stage.

Steve said: “I am a singer and I often perform at local pubs and festivals. I find that performing and being on stage really helps my Tourette's

“I like to keep busy; my tics are at their worst when I am sat around doing nothing. I also have a great group of friends that help me and that I feel comfortable around.”

This summer Steve is releasing an EP called Colours and the title track has already been released as a single.

He said: "It's about anxiety and a bit about Tourette's and not wanting to come out of your room and just hiding away, but then meeting someone who brings you back into the light.

"I get grief all the time for having Torette's. It's a very misunderstood condition.

"As I get older I'm assuming I get wiser and once I explain to people what the problem is it's usually fine."

Sign up to read this article
Read news from 100’s of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.