All Jaymee Schmitt wants is to make happy memories with her family.
It is a simple dream, but for the Esperance mum, it also needs to happen with heartbreaking urgency.
Her eight-year-old daughter Lylah, who Jaymee describes as "a bright bubble to be around" has already faced far more than her fair share of challenges.
She uses a wheelchair, is non-verbal, and suffers a heart and lung condition called severe pulmonary hypertension, as well as seizures.
But following a terrifying ordeal last year, where Lylah stopped breathing and had to be revived by her father Rob on the way to hospital, she was diagnosed with another condition called severe tracheomalacia, which causes her airways to collapse.
She is now classified as a palliative patient.
That goal is now set to become a little easier after a charity made one of the family's wishes come true.
Getting a wish for Lylah
Granting wishes has been difficult lately, even for the organisation world-famous for doing just that.
Joel Nicholls, from Make-A-Wish Australia, says many of the children the organisation is involved with have been particularly vulnerable during the pandemic, which meant many wishes involving travel or people coming together have been simply off the table.
"So a lot of our work has been around just keeping them looking forward to that moment."
While that means there are now more than 800 children across Australia waiting to have their hopes granted, he said the group had made a special effort to fast-track the wishes of some seriously ill children.
Earlier this year, Lylah was one of them.
"I never thought of applying for Make-A-Wish as you always think other children need it more," Jaymee said.
"But when Lylah got so sick, I thought 'I'm going to attempt to get a wish made for Lylah'."
Within a month, it had been granted and Lylah received a sensory play area, which allows her to be included and have a place to go outside.
It is made up of a circular hanging daybed with cushions and throw blankets for Lylah to sit or lie back in, even when receiving oxygen, and matting on the floor so she can move around safely.
"She's just constantly smiling [when she's in it]," Jaymee said.
"It's given her more independence as well, she doesn't have to be monitored as such because she is in such a safe environment."
This month, Make-A-Wish launched an urgent appeal, aiming to raise $120,000 to grant the wishes of 34 other seriously ill children.
Jaymee said the donation had changed her family's lives and encouraged others to get involved.
"If a tiny donation can help change someone's life like it has for us, all I can do is try and encourage that and help other people's wishes come true."
