The brother of a severely epileptic boy has issued a desperate plea to the government to help his family.
Nine-year-old Thomas Braun has written to the Prime Minister asking him to help get medical cannabis prescription for his brother on the NHS.
Thomas says that his brother, Eddie, requires a lot of additional care because his complex epilepsy can cause him to suffer up to 100 seizures a day.
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As his parents primarily care for Eddie, Thomas says his mum and dad should not have the 'added worry' of trying to find 'lots of money to pay for his medicine.'
Thomas, who is from Farndon, Cheshire, says he felt compelled to appeal to government because his family means 'everything' to him.
Speaking about dropping the letter off at Downing Street, Thomas said: "I felt nervous, it was intimidating. But it was also very exciting, because this is my chance to actually help change my brother's life and family's life.
"If the Government would pay for it, we wouldn't have to worry about fundraisers and things, and that will give us more family time."
Eddie's family can spend up to £780 per month on his life-transforming medical cannabis medication, but for families with older children it can cost up to £2,000 a month.
In 2018, his treatment was legalised after lobbying campaigns by the families of the then six-year-old Alfie Dingley and 13-year-old Billy Caldwell.
But since the law changed only three children with severe epilepsy have been granted medical cannabis on the NHS.
Ilmarie Braun, Thomas and Eddie's mum, said: "Being a parent is wonderful and it can also be challenging. Then being a parent to a child who has complex needs is in its whole own world of difficult because you have to fight for access to everything.
"A school place, adaptations at home to make it accessible, the right wheelchair, to then try to manage Eddie's medication needs, that's just beyond what's reasonable."
Ms Braun said her family has been fortunate to have the support of family and friends who hold fundraisers, but other families have had to sell their homes or stop the medication entirely.
Ms Braun added: "We want Boris Johnson to act now. He can unlock emergency funding to cover this whilst all of the necessary steps are taken to commission the trials, all of these things that they've been talking about for three years that need to happen."
