Sullivan Hurn is in remission after a year of treatment for a rare and aggressive cancer.
Nicknamed Sully, the Singleton youngster turns five on Monday.
"His last chemo was in December. He's been in remission now for six months," his mum Grace Hurn said.
"He has three-monthly check-ups, so it's definitely not over. But I feel like we can see light at the end of the tunnel, which is amazing.
"He's doing so good."
Mrs Hurn spoke to the Newcastle Herald to support a tax appeal for the Kids with Cancer Foundation, ahead of the financial year's end.
A foundation spokesperson said an anonymous philanthropist had committed to match every dollar, up to $10,000, donated before 10am on Saturday.
The foundation funded Sully's nasogastric tube and associated equipment he needed during treatment.
Mrs Hurn said the support was amazing.
"His milk and medication went down that tube. He called it Tubey," Mrs Hurn said.
The foundation also funds a social worker position at John Hunter Children's Hospital, which supported the Hurn family during Sully's treatment.
Mrs Hurn has spoken to the social worker since Sully's remission.
While the family was excited and grateful that Sully got through his treatment successfully, they had noticed a gap in the health system.
"We still feel like we need guidance and support. Sully doesn't eat or sleep properly. He's scared of other adults," Mrs Hurn said.
"We've talked to a lot of other parents we've become friends with. We all say the same thing. Where to next?"
The family is planning for Sully to start kindergarten next year.
He isn't attending preschool, as he has "huge separation anxiety", his mum said.
"The preschool is working with us. He has reward charts and things to follow that seem to be helping. We're not against holding him back.
"But he's also a very smart little thing. I think school might be really good for him. His big brother is at school, so we're hopeful he can get there."
Sully was diagnosed with rhabdomyosarcoma in March last year at age three.
The cancer was attached to his prostate, bladder and kidneys.
He spent a fortnight at Westmead Children's Hospital in November last year for surgery and brachytherapy radiation.
"He had a C-section surgery, where they removed the tumour that they could see from his bladder," Mrs Hurn said.
"Then he did the radiation. They did all that for five days straight. He was in a coma that whole time.
"All his imaging is now really good. The doctors are really happy."
Sully has two siblings - George, 6, and Audrey, 1.
His dad Jack Hurn works in the mines and Mrs Hurn is a special-ed teacher.
"I'm back three days now, which is great. Were getting back to a new normal," Mrs Hurn said.
"People say you still talk so positively about what happened to Sully. That's the type of people we are. You can think the worst, but also that were going to get through this."
Nonetheless, she said it was "a journey you would never wish upon anybody".
"Were really lucky to have our family, and the community support has been amazing."
