- Jesy Nelson 's new Prime Video documentary , Jesy Nelson: Life Changing , follows her campaign to change UK newborn screening laws for Spinal Muscular Atrophy (SMA).
- Nelson's twin daughters, Ocean Jade and Story Monroe, were diagnosed with SMA, prompting her advocacy for the condition to be included in the heel prick test.
- The documentary features Nelson's tearful interview with former health secretary Wes Streeting , in which she questioned why SMA screening was not already a standard part of newborn testing.
- Nelson expressed her frustration and heartbreak over her daughters' delayed diagnosis, believing early screening could have prevented some of the devastating effects of SMA.
- The Department of Health announced that a national newborn screening programme for SMA will be rolled out across England from the end of this year, following an evaluation programme.
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