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The Independent UK
The Independent UK
Lifestyle
Holly Bishop

Jesy Nelson slams ‘unfair’ SMA rollout as star heads to parliament for crucial debate

  • Jesy Nelson has criticised the "unfair" rollout of spinal muscular atrophy (SMA) tests, likening it to a "postcode lottery".
  • Her daughters, Ocean Jade and Story Monroe Nelson-Foster, were diagnosed with the rare genetic condition earlier this year.
  • Nelson launched a petition for the inclusion of the SMA test, which has since gained over 150,000 signatures.
  • The petition is scheduled for a parliamentary debate on Monday, 22 June, which Nelson will attend.
  • She expressed concern that the current rollout would only cover 72 per cent of England, meaning some babies would not be screened based on their location.

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