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The Independent UK
The Independent UK
National
PA Reporters

Jesy Nelson challenges Wes Streeting over SMA screening ‘madness’

  • Jesy Nelson is campaigning for faster screening for Spinal Muscular Atrophy (SMA) following her twins' diagnosis with the rare genetic condition.
  • She advocates for SMA1 screenings to be included in the newborn blood spot screening test, also known as the heel prick test.
  • Nelson's twins were diagnosed with SMA, a condition that means they will likely never be able to walk.
  • She discussed the issue with Health Secretary Wes Streeting on ITV’s This Morning, questioning why screenings are not standard despite available treatments.
  • The singer said: “It’s just madness to me that we are living in a day and age now where we have got three treatments that are life-changing and it’s still not part of the heel prick test.”
  • Nelson expressed her hope that Mr Streeting will expedite the process and 'put his money where his mouth is' to bring about change.
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