Get all your news in one place.
100’s of premium titles.
One app.
Start reading
Liverpool Echo
Liverpool Echo
World
Andrew Nuttall & Aaliyah Rugg

'Inspirational' Eva would have loved to help other families facing devastating diagnosis

The memory of a "beautiful and inspirational" young girl will live on to help others, her family pledge.

Ten-year-old Eva Williams died in January 2021 following a 12-month battle with cancer.

The North Wales-based family were told to make memories when their little girl was diagnosed with an inoperable tumour sitting in her brain stem known as a diffuse intrinsic pontine glioma (DIPG).

READ MORE: Suspected shooting now being treated as brick attack

Given the devastating news at Alder Hey children's hospital, their lives were "changed forever" as the then-nine-year-old was given a diagnosis they were "completely unaware of".

Eva was blue-lighted to Alder Hey on December 31, 2019, following a CT scan after complaining about her vision - and what followed, the family said, was "the longest night of our lives".

Sadly, parents Paul Slapa and Carran Williams were given their daughter's devastating diagnosis and told to "go home and make memories" with Eva.

Now, almost a year on from her death, Eva's family continue to raise awareness and provide support for families across the UK going through one of the toughest experiences they will ever face, North Wales Live reports.

Now Paul and Carran are using funds raised to help pay for life-extending treatment, to set up the Unbeatable Eva Foundation.

Paul said: "During Eva's illness we had some really amazing things gifted to us by some incredible charities that helped us make memories when lockdown made that task seemingly impossible.

"We had a conversation with her at the time when we were fundraising for her medical treatment about what we'd like to do for other people.

"She was just so keen to give back to all the amazing people that were willing to help her and also help other families going through what had become our new reality as a family."

Paul explained how one charity had sent Eva gift boxes that made it feel like "Christmas had come early" and ever since, she wanted to do something similar for other children living with a DIPG diagnosis.

He added: "When Eva passed away we were always going to do something, it was just figuring out what and how.

"The charity was set up at the beginning of February [2021] and we worked to a point where we were able to send out some really bright and colourful gift boxes to families like she wanted.

"It would really help other families with that memory making process.

"Our other main objective as parents is to one day change the outcome of what a DIPG diagnosis means.

"Right now, it's terminal but we are trying to find research or clinical trials here in the UK that we can support."

As of 2021, DIPG is a rare form of childhood brain tumour that is considered terminal from the outset, according to the Brain Research UK charity.

Most youngsters given the heart-breaking diagnosis of DIPG have a life expectancy of just 12 months.

Paul Slapa with wife Carran, and Eva on left with sons Finn and Ethan (Paul Slapa)

Paul said: "We were fundraising to get Eva to America for clinical trials. The reality is that, for a lot of families, overseas treatment is completely out of reach financially.

"As a charity, we are hopeful that we can one day bring something to the UK that won't see families billed hundreds and thousands of pounds.

"We're doing all of this because we lost a daughter - that's something no parent should ever have to face. She was such a caring little girl and I think she'd be pleased that we're wanting to make a difference and care for other people.

"Despite everything she went through, she maintained her fun and caring personality.

"I know, and wish more than anything, she would love to have been involved in what we're doing.

"I just hope she can be proud of what we're doing, and trying to achieve, out of what has been the most horrific thing to happen to our family."

To date, they have supported over a dozen families, with hopes that they can reach out to many more in the future.

Receive newsletters with the latest news, sport and what's on updates from the Liverpool ECHO by signing up here

Sign up to read this article
Read news from 100’s of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.