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Daily Mirror
Daily Mirror
National
Michelle Morgan Davies & Almara Abgarian & Bradley Jolly

'I'm 17 and planning my own funeral with rainbow colours after my cancer diagnosis'

A teenage girl dying of bone cancer is determined to live life to the fullest but has planned her own funeral - including choosing her own casket, dress and putting together a playlist.

Eden Lewis, 17, wants mourners to wear rainbow colours, has picked songs for each stage of the ceremony and even identified a wicker casket.

The teenager has been taking a drug to prolong her life since April last year, around when her osteosarcoma was deemed terminal.

It is a rare bone cancer with only 550 cases diagnosed in the UK each year.

Despite gruelling chemotherapy and surgery to remove a 13cm tumour from her right thigh, Eden's cancer worsened and she is now living on borrowed time.

Eden, pictured with her mum Tess, says life is for living (Jam Press/Eden Lewis)

"While I was in hospital and missing school it felt like my friends had grown up and moved forward in life without me," Eden said today.

"They had boyfriends and girlfriends while I had blood tests and toxic chemicals.

"They threw parties while I was throwing up.

"I was no longer me, I was a new me, mentally and physically. Even now I'm constantly exhausted and in pain 24/7.

"I miss out on so much."

The girl was diagnosed with bone cancer in 2020 and has had chemotherapy since then (Jam Press/Eden Lewis)
Eden had a 13cm tumour removed from her leg and a knee replacement in 2020 (Jam Press/Eden Lewis)

Eden lives in Caerphilly, south Wales, with her mum Tess, 39, her stepdad Cameron, also 39, and her younger siblings Logan, six, and two-year-old Faora.

The youngster has been determined to fulfil her dreams, like studying at college, getting her first kiss and going to concerts to see her favourite pop star, Harry Styles.

"Since I was tiny I always wanted to work with animals, so it was only right that I went to college to study animal care," Eden said.

"I also have pets at home, three cats and four guinea pigs.

"I enjoy spending time with them all and using what I learn in college to enrich their lives to the best possible.

"My brother and sister keep me going and always make me laugh and smile.

"I try my hardest to do things with them, so when I'm no longer here they'll have some lovely memories of me."

Despite her diagnosis, Eden went to her prom with a police escort (Jam Press/Eden Lewis)

Although it is an incredibly challenging situation, the teenager is tackling it head-on, even creating her own funeral arrangements – from her playlist to colours and her coffin.

She said: “I've already spoken with a local funeral director about my funeral plans.

“I've picked the songs for each stage, I've spoken of how I'd like a black horse and carriage, with deep purple plumes and rugs.

“Along with a wicker coffin.

“My funeral dress hangs in my wardrobe, waiting for my funeral.

“I've chosen two very special charities for people to make donations to and I want people to wear their favourite colours, so my funeral becomes a rainbow of colours.

“I was treated on the Rainbow Ward at Noah's Ark Children's Hospital in Cardiff for my cancer, so rainbows mean a lot to me and it's important that they feature in this stage of my life.”

The teenager, of south Wales, was told last year cancer is no longer curable (Jam Press/Eden Lewis)

As for her playlist, it will, of course, feature her top artist.

Eden said: "Harry’s songs ‘Sign of the Times’ and ‘As It Was’, speak loudly to me and feature in my funeral playlist that I'm putting together.

"So many lines in his songs help me with how I feel in this journey with cancer and of when I have to leave this world.

"My favourite song is ‘Watermelon Sugar’, it chills me right out and has helped me focus when I've been afraid.

"He seems like someone you could have a good night out with and feel free.

"I listen to his solo music on repeat all day.”

The superfan saw Styles in person on 21 June, when he performed at Principality Stadium in Cardiff.

She says she loves Harry for his "floppy hair, his cheeky smile and how he not afraid to be himself”.

Eden went to see Harry Styles play in Cardiff last month (Jam Press/Eden Lewis)

Her mum, Tess, who surprised her daughter with the concert tickets for her birthday this month, said: "In 2022, Eden was declared terminal.

“We were devastated but she has made us so proud with her attitude.

"She says life is for living, not for waiting to die.

"In March 2022, Eden had 40 per cent of her left lung removed and went on to do her GCSEs.

“She got 5 C's and 5 B's and even went to her prom with a police escort.”

The young woman has been determined to live life to the fullest (Jam Press/Eden Lewis)

Despite her harrowing future, Eden is focused on the here and now with a list of things she wants to do before she dies – but she doesn’t call it a “bucket list” as that “seems too final” so she calls it her “f**k it list”.

Eden added: “I'd love to go to Disneyland, but unfortunately it's not possible due to my health.

“So some women my mum knows have arranged a special Disney-themed afternoon for me and I can't wait for [it].

“I'm also hoping to see Lewis Capaldi at Chepstow, but completely respect Lewis if the concert doesn't go ahead.

“I have a list of things I'd love to do, from glass-blowing, sitting in my dream car (Bugatti Veyron), to trying as many different types of food, drinks and treats from around the world.

"I don't have a bucket list, because it sounds too final, so instead I have a f**k it list."

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