A Liverpool family's dream life living abroad turned into a nightmare when their ten month old daughter was struck down by an illness more often associated with older people.
Amelia Clarke seemed to be a perfectly healthy baby but before she even reached her first birthday she had to fight a life or death battle that continues to affect her life to this day.
Amelia's mum Janie Clarke told the ECHO: "When she was 10 months old she had a high temperature, we took her to hospital.
"She had a low immune system and was getting genetic testing to check things were ok. They put her on broad range antibiotics. After a few days we ended up in the ICU, then while there she developed an infection in her gut."
"Then, because of her underlying genetic condition, which we didn't know about at the time, her bone marrow stopped working. She developed sepsis which affected her organs and her heart.
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"She developed a vegetation (an infected mass) on her heart, then pieces of the vegetation broke off and caused blood clots in her arms and legs and caused her to suffer two strokes."
Questions over quality of life
Amelia's parents Janine and Jay, from Croxteth, who were living in Australia at the time, were warned to prepare for the worst.
Janine said: "She was in ICU for five weeks, we were told that if she did survive they didn't know what quality of life she'd have. Despite everything, she's doing really well at the moment.
"The Strokes have caused her the most damage, she still can't use her right arm and she's not talking even though she's just turned two. She eats mashed up food because of the strokes but she still can't drink properly and is fed her fluids through an NG tube."
The only indication of Amelia's rare condition was when doctors noticed her immune system seemed lower than normal during a hospital visit at six weeks old - but doctors assumed it was due to an infection.
Genetic tests were in the process of being done when she had the life altering strokes ten months later.
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Bum shuffles
The determined two year old has already defied the odds by surviving and breathing on her own. She has also found ways to adapt to the world around her.
Janine says: "She loves to bum shuffle around the house because that's her way. She's finding her own way to adapt. Her older brother Lucas (three) is only 12 months older than her and she watches him and tries to do what he can do. It gives her confidence to do what he can do. If she wants to do something, she will find a way.
"We don't know if she'll ever speak. Her stroke affected the left side of her brain, very close to the speech part of her brain and all we were told was they don't know if she'll be able to talk. It's difficult but we hope that, we were originally told she might not be able to breathe on her own, and she is, so we're hoping she keeps defying the odds."
"Most determined little girl that we know"
Amelia is already showing positive signs with Janine saying she's started making "lots of sounds" giving the family hope she'll start talking soon.
Janine said: "She is the strongest, happiest, most determined little girl that we know. She has a long road ahead of her but we will all be there to help her every step of the way and watch her grow and achieve whatever she sets her mind too. "
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The whole family - Janine, Jay, Amelia and Jack - took part in a 5k Stroke Resolution Run at Croxteth Park on Sunday to raise awareness of strokes in young children.
"We have been in touch with someone from the Stroke Association since we moved back to the UK, they gave us a lot of guidance, it's because of that we decided to do the run and raise awareness that kids have strokes too."
You can donate to Amelia's fundraising page here.
