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Daily Mirror
Daily Mirror
National
Matthew Dresch

Hero doctors help girl, 1, see again after losing vision in both eyes to cancer

Hero doctors helped a one-year-old girl to see again after cancer caused her to lose her vision.

Frankie Butterworth, 29, from Blackpool, first realised something was wrong with her daughter Elsie Mottram while they were on holiday in Greece last summer.

Elsie started crawling into walls and her mum noticed she had a squint, her eyes were rolling and one of her pupils was out of line.

When she and husband Dan, 29, returned to England they took the tot to her GP, only for the doctor to misdiagnose her with an eye infection.

Acting on instinct, Frankie took her daughter to A&E and eventually spoke to a consultant who suspected the girl had a rare type of eye cancer called retinoblastoma.

Only around 45 children are diagnosed with the disease every year in the UK, with Elsie receiving her official diagnosis at Birmingham Children's Hospital in July.

Dental nurse Frankie said: "We had never heard of it. I was distraught.

"The tumours were so big they were blocking her vision. They told us she was completely blind in her right eye.

"In her left eye they thought she could still see light and figures but not our faces.

Elsie with the 'white glow' which can be a symptom of retinoblastoma (Frankie Butterworth)

"I told them she used to look at me through the eye and now she looked straight through me."

The doctors informed them they did not think she would not be able to see again out of her right eye, although they were more hopeful about her left.

The tot underwent five months of gruelling chemotherapy at Manchester Children's Hospital in a bid to shrink the tumours.

In December, the family went back to the hospital for a test to see if Elsie's vision had come back.

Elsie lost her vision in both eyes due to the rare cancer (Frankie Butterworth)
Her tumours shrank by 70 per cent within the first month of chemotherapy (Frankie Butterworth)

Frankie said: "On her first test we were told she had vision in both her eyes.

"It was amazing. At first they were saying she would probably go to a special school and wouldn't be able to drive.

"It was completely life-changing finding out her vision was back."

The family were lucky to catch the cancer so early and managing to get it diagnosed within two weeks of Elsie's first symptoms.

She received expert care at hospitals in Manchester, Birmingham and Blackpool (Frankie Butterworth)

Apart from a squint, the youngster was not initially displaying any of the typical signs of retinoblastoma.

Usual symptoms include a change in the colour of the iris, poor vision, a red or inflamed eye and an unusual 'white glow' in the pupil.

The 'white glow' is visible in pictures as a result of the camera's flash reflecting off the tumour, Frankie said.

The mum-of-three is now urging parents to trust their gut if they think something is wrong with their child, adding that Elsie's condition was originally misdiagnosed as an infection.

The one-year-old is now undergoing laser treatment to remove what is left of the cancer (Frankie Butterworth)
Elsie's parents were told she would probably never be able to see out of her right eye (Frankie Butterworth)

Although the youngster's cancer is still active, it is not expected to spread and she is currently undergoing laser treatment to completely remove it.

The family are grateful to staff at Manchester Children's Hospital for helping restore their daughter's vision.

They also thanked health workers at Blackpool Victoria Hospital, where Elsie spent many nights during her chemotherapy.

The Childhood Eye Cancer Trust (CHECT) also gave them emotional and financial support.

Frankie and Dan, a quantity surveyor, celebrated a major milestone on December 30 when they rang a bell at Manchester Children's Hospital to mark the end of Elsie's chemotherapy.

They are now keen to raise awareness about the disease, which generally only affects children under the age of five.

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