Get all your news in one place.
100’s of premium titles.
One app.
Start reading
ABC News
ABC News
Health
By social affairs correspondent Norman Hermant

Girls with autism often struggle to be diagnosed for years

Natalie Galvin with her daughter Emma and son Nathan, who have both been diagnosed with autism.

Girls living with autism are often misdiagnosed, misunderstood or missed completely, says a group formed to support girls with Autism Spectrum Disorder (ASD).

Officially, boys outnumber girls with ASD four to one, but experts say that figure is misleading.

"[Autism] is much tougher to spot in the girls," said Danuta Bulhak-Paterson, a clinical psychologist who wrote a book about girls living with autism, Aspie Girl.

"They have a very different presentation to boys on the spectrum."

Boys living with ASD will often be quickly diagnosed based on telltale signs, such as difficulty socialising and communicating, and repetitive and inflexible behaviour.

Girls are often able to mask these symptoms.

"They often give good eye contact," said Ms Bulhak-Paterson. "They're far better at imitating and often observe before they have a go. So they're real chameleons."

Katie knows all too well how hard it can be for girls to be properly diagnosed. Both her daughters, who are aged eight and six, have now been diagnosed as having ASD level one — also referred to as Asperger's syndrome.

Girls with ASD can be intensely shy. Katie struggled for years to have her youngest daughter diagnosed.

"We were looking for three years for answers to explain the possible concerns we were having," she said.

"I went to probably 10 different doctors over the two or three years. Not one mentioned the word autism or Asperger's."

Katie is the founder of Yellow Ladybugs, a group that supports girls with ASD.

On World Autism Awareness Day, April 2, they have planned events to help raise awareness of girls living with autism and the fact that ASD is often initially missed in girls.

"It's so important because girls are getting diagnosed later in age than boys," she said. "So they miss out on the critical early intervention funding."

Professionals said 'she's just shy'

Natalie Galvin also knows how hard it can be to identify autism in girls. Her six-year-old son Nathan was diagnosed with ASD relatively quickly. But that was not the case for her eight-year-old daughter Emma.

"With Emma, we noticed from a young age the symptoms were there, just not as intense," she said.

"Every time we approached a professional to talk about it, it was always dismissed as she's just shy. Or she'll be fine."

Emma had repetitive behaviours and an overwhelming fear of people.

She was eventually diagnosed with ASD.

"It was just such a sense of relief," said Ms Galvin. "To have actually finally got that diagnosis and understand what's going on now."

'It was easy to work out life from there'

The relief of a proper diagnosis is something Chloe Hayden can relate to. The 18-year-old lives with ASD level one.

For her, there were years of social agony at school until she was diagnosed at age 13.

"Everything just fell into place. And it was so much easier to be able to figure everything out after that," she said.

"It was easy to just kind of work life out from there."

Ms Hayden is now an ambassador for Yellow Ladybugs, helping to support girls and young women who live with autism.

She runs a small performance business based on her passion for fairy tales, and also works as an actress.

Her message: Autism Spectrum Disorder does not define her.

"Everybody's different, and everybody has their own little quirks and traits," she said.

"I think it's really important that kids can see that autism isn't what makes them them. It's not a label which sticks itself onto you. It's just another part."

Sign up to read this article
Read news from 100’s of titles, curated specifically for you.
Already a member? Sign in here
Related Stories
Top stories on inkl right now
One subscription that gives you access to news from hundreds of sites
Already a member? Sign in here
Our Picks
Fourteen days free
Download the app
One app. One membership.
100+ trusted global sources.