Hobart artist Sonia Heap's work has always been about fashion as a form of expressing identity, but her newest collection, On Memory, uses couture clothing to explore how dementia can see our identity unravel.
The work, performed at Hobart's Moonah Art Centre, is a response to the grief experienced by Heap as she watched her mother's memories slip away.
Heap says dementia takes away those threads, which is why it is so frightening.
High profile clients
Heap is known for her hand-made, highly detailed work, and her clients include the likes of Kirsha Kaechele, the artist and wife of Mona museum's David Walsh, whose wedding dress she designed using Finnish reindeer suede and hand-polished Japanese and Czech beads.
On Memory is not the first time Heap's couture has used design for a cause.
Her last show in 2016, called The Armoury, used clothing to express surrounding domestic violence, which the designer experienced herself.
Giving back
This time, Heap wanted to use her skills to help cope with and support her mother's dementia, as well as to raise awareness about the role of Dementia Australia.
Her goal was to create something that would help carers – and ourselves as future sufferers of dementia – find a positive way to manage the journey of dementia.
In 2016, dementia became the leading cause of death of Australian women, surpassing heart disease, and the third leading cause of death of men.
According to Dementia Australia there are 472,000 Australians living with dementia and almost 1.6 million people involved in their care.
Heap says dementia is something we are frightened of because, by taking away our memories, it takes away who we are.
"It's terrifying and I think that's part of the reason we tend to hide people with dementia away — not just because it's difficult when it gets to a certain point to manage," she said.
Ms Heap says losing memory means you start to live in the now and life becomes sensory dominant.
"So, what I've tried to do with this performance is to actually raise up the senses," she said.
Raising up the senses
Heap said her mother was with her throughout the development of the performance.
"When she's touched the fabric, the lighter silk chiffon, or silk organza, and she feels it move across her hand, she says it's almost not there," she said.
On Memory is about light, music, touch, and the movement and colours of the clothes.
Collaborating with lighting designer Jason James, the performance is an ephemeral experience, seen through fog-like mist and dementia-friendly lighting.
She also worked with composer Heath Brown to create accompanying music for the performance.
"[It is] a score of aching beauty, that really grasps you, like grief, but which at the end raises you up in a gentle accepting contentment," Heap said.
The four stages of grief
The show is divided into four parts, each representing a different aspect of memory, identity, loss and grief.
"The person before you still has glimpses of memory that are like bright points."
Part two represents rivers of tears and features dresses with blue threads stitched into crosses to resemble the structure of tears.
"Rain has always reminded me of tears and there have been a lot of tears," Heap said.
The third section deals with both the loss of memory and the tears that Heap and her mother have shed about that loss.
"That grief is a terrible thing, and you're very alone," she said.
"I think that is mirrored in people with dementia.
A show filled with flowers
The final phase of the show is filled with flowers to represent both memories and how we memorialise our life through flowers.
Hobart-based florist The Floral Criteria designed the displays, while Hobart printing house Inkpot studios printed Heap's floral designs onto fabric.
The fabric has been transformed into 17th-century memento mori — an artistic or symbolic reminder of the inevitability of death.
"Flowers give us solace and memorialise the person," Heap said.
"They come as the memory of our loved one but also the thing that gives us joy.
