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The Guardian - UK
The Guardian - UK
World
Jo Griffin

‘Disability is possibility’: a mission to bust myths in India – photo essay

Five women who survived acid attacks standing in front of the Taj Mahal
Five women who all survived acid attacks pose in front of the Taj Mahal. They help to run the Sheroes Hangout cafe in Agra, set up by the Chhanv Foundation. From left to right: Rukaiya Khatun, 37; Bala Prajapati, 26; Roopa, 27; Madhu Kashyap, 40; and Dolly, 20. Photograph: Vicky Roy/Every One Is Good at Something

When he isn’t working on the farm or making things out of jute, Gobinda Majumdar likes to walk to a tea stall near his home in Assam to buy sweets for his nieces. All this he explains with tactile signing, the only means of communication for the 37-year-old, who cannot speak and has no hearing or sight.

Born deaf, Majumdar then went blind at the age of two after contracting rubella. Life has its challenges but he hopes to find a wife. “My younger brother is married so why not me?” he told the photographer Vicky Roy, who visited him in Kamrup district as part of a project to share stories of people with disabilities in rural India.

“I aim to highlight ordinary people with disabilities so their relatable stories strike a chord among others like them and create awareness about disability among the general public,” says Roy. “My clear objectives are: focus on the person, not the disability; show them not as objects of pity but as ordinary human beings pursuing their simple dreams; and make sure there is an equal mix of male and female subjects.”

Gobinda Majumdar
Gobinda Majumdar lives in Chhaygaon in a remote area of Assam. He was born deaf and cannot speak, and he went blind aged two after contracting rubella. The eldest of five, he is independent although he lives with his mother and married brother. He communicates by tactile signing.
Photograph: Vicky Roy/Every One Is Good at Something
Gobinda Majumdar
Gobinda Majumdar makes bamboo doors, jute rope and coconut-leaf brooms, which he sells in the market. Photograph: Vicky Roy/Every One Is Good at Something
Gobinda Majumdar
Gobinda Majumdar’s father, who died seven years ago, taught him everything about working on the family’s one-hectare farm. Photograph: Vicky Roy/Every One Is Good at Something
Gobinda Majumdar
Gobinda Majumdar with his family. Photograph: Vicky Roy/Every One Is Good at Something
  • Gobinda Majumdar was born deaf and went blind at the age of two. He makes things to sell out of jute, bamboo and coconut leaves and his late father taught him how to look after the cattle and run the small farm where he lives with his family

Roy has been travelling across the country – Covid permitting – for the past six months, photographing people with the 21 disabilities officially recognised in India. The project Everyone is Good at Something (EGS) is publishing a steady stream of stories to challenge widespread stigma and taboo. “Hopefully, these images will open up discussion of disability and perhaps even influence policy,” he says.

“Real change takes time and we will continue this for as long as it takes,” says VR Ferose, founder of the India Inclusion Foundation, who launched EGS with Roy, with the goal of publishing 15,000 stories from every state in the country.

“The law in India is very progressive in terms of protecting the rights of people with disabilities. The problem is most people don’t know about it,” says Ferose, an engineer based in California, who began working on disability rights after his son was born with autism 12 years ago.

“We know that in India people don’t talk about disability because there is a sense of taboo. One reason may be the notion of ‘karma’, where people think someone has a disability because they did something evil in the past,” he says. “We asked ourselves: how do we change this narrative, and we decided to do a kind of Humans of New York [a photoblog of street portraits and interviews], but featuring people across India with disabilities.”

Tiffany Brar
‘Disability is possibility,’ says Tiffany Brar, 30, who runs a centre to equip blind people with life skills.
Photograph: Vicky Roy/Every One Is Good at Something
Nincy Mariam Mondly
Nincy Mariam Mondly was training as a paramedic when a fall injured her spinal cord and left her paraplegic. Her love of painting has helped her cope. Photograph: Vicky Roy/Every One Is Good at Something
Tariq Ahmad Mir
Award-winning artisanal embroiderer Tariq Ahmad Mir was born with muscular dystrophy, as were his two brothers. Photograph: Vicky Roy/Every One Is Good at Something
Sohkhotinlen Haokip
Sohkhotinlen Haokip, 31, has Down syndrome and enjoys being around people. Photograph: Vicky Roy/Every One Is Good at Something
  • ‘Disability is possibility,’ says Tiffany Brar, 30, who runs a training centre for blind people. Nincy Mariam Mondly was training as a paramedic when a fall injured her spinal cord. Tariq Ahmad Mir, an award-winning embroiderer, was born with muscular dystrophy. Sohkhotinlen Haokip, 31, has Down’s syndrome and enjoys being around people

Amer Hussain Lone
Amer Hussain Lone, who lost both arms aged eight, is the captain of the Jammu and Kashmir para-cricket team Photograph: Vicky Roy/Every One Is Good at Something
  • Amer Hussain Lone, who lost both arms aged eight, is the captain of the Jammu and Kashmir para-cricket team

India’s census records about 2% of the population as having disabilities, compared with a world average nearer 15%, which suggests many people do not discuss disabilities in their family, says Ferose.

In 2015 victims of acid attacks were added to the list of disabled people, and Roy went to Agra in Uttar Pradesh to meet five women who help run the Sheroes Hangout, a cafe and community for acid-attack survivors.

Now 27, Roopa was 14 when her stepmother poured acid on her face. Today she looks after the accounts and designs for the boutique at Sheroes.

The women who run Sheroes Hangout cafe in Agra
The women who run Sheroes Hangout cafe in Agra.
Rukaiya Khathun, front right, was 14 when she was attacked with acid. She says: ‘I used to always wear a burqa, but now I am comfortable in jeans and T-shirt.’
Photograph: Vicky Roy/Every One Is Good at Something
  • The women who run the Sheroes Hangout cafe in Agra. Rukaiya Khathun, front right, was 14 when she was attacked with acid. She says: ‘I used to always wear a burqa, but now I am comfortable in jeans and T-shirt’

Roy says he deliberately seeks out stories that that have received little coverage, but the project also features some leading campaigners.

After his leg was amputated following a bomb attack in the Kargil war, Maj Devender Pal Singh from Chandigarh began running half-marathons. Known as India’s “first blade-runner”, he interviews former soldiers who have overcome similar challenges in life on his YouTube channel, Never Say Die, and founded The Challenging Ones, an organisation that has encouraged more than 1,400 amputees across India to take up sports.

Major Devender Pal Singh
Major Devender Pal Singh from Chandigarh, who is known as ‘India’s first blade-runner’. Photograph: Vicky Roy/Every One Is Good at Something
  • Maj Devender Pal Singh from Chandigarh, who is known as ‘India’s first blade-runner’

In Akuluto, Nagaland, Ashe Kiba remembers the cruelty of neighbours who believed she was “cursed” because she was born with fewer and shorter fingers. She would hide her hands and skipped years of school because of taunts. Eventually, however, she completed a degree in English literature and began speaking for the Nagaland State Disability Forum (NSDF), of which she is now the general secretary.

Ashe Kiba
Growing up, Ashe Kiba was taunted by others who believed she was cursed because her hands were different.

Photograph: Vicky Roy/Every One Is Good at Something
Ashe Kiba
Ashe wanted to drop out of school but her mother encouraged her to continue with her education. Eventually she graduated with English Literature as her major from Prabhananda Women’s College in Dimpur. She decided to become a voice for others like her and began speaking in public for the Nagaland State Disability Forum. Today she is general secretary of the organisation.
Photograph: Vicky Roy/Every One Is Good at Something
Ashe Kiba
Ashe Kiba in the kitchen at home. In her spare time she loves to watch Disney fairytales, cook smoked pork with axone, listen to the local Aplono Gospel Band and hang out with friends. Photograph: Vicky Roy/Every One Is Good at Something
Ashe Kiba
Ashe Kiba with her family. Her message to all people with disabilities is: ‘Be strong and fearless. We must accept our uniqueness. Let’s not hide.’ Photograph: Vicky Roy/Every One Is Good at Something
  • Growing up, Ashe Kiba was taunted by others who believed she was cursed because her hands were different. She wanted to drop out of school but her mother encouraged her to continue. She graduated in English literature and decided to become a voice for others like her. She is now general secretary of the Nagaland State Disability Forum. Her message to all people with disabilities is: ‘Be strong and fearless. We must accept our uniqueness. Let’s not hide’

Each story includes five images, with subjects photographed at home – in their own “kingdom”, says Roy – with their families.

“Society either ignores people with disabilities or treats them as lesser human beings. It does not give them a chance to reveal their thought-provoking views, their diverse abilities and even their sense of humour,” says Roy, who will eventually recruit other volunteers to help with the project.

From left, friends Simi Kalita, Sisila Das and Runu Medhi
Friends Simi Kalita (left); Sisila Das (centre) and Runu Medhi (right) are inseparable. The three friends, who live in Guwahati, Assam, love to travel together and chat, sing and paint.
Silsila Das (37) contracted polio when she was two. Runu (35) was a premature baby whose twin died at birth and cerebral palsy affected her mobility and speech. Simi (34)- who is Runu’s cousin - also has cerebral palsy. Sisila wants to enter politics and become a voice for people with disabilities.
Photograph: Vicky Roy/Every One Is Good at Something
  • From left, friends Simi Kalita, Sisila Das and Runu Medhi, who live in Guwahati, Assam. Sisila contracted polio when she was two. Runu was a premature baby, whose twin died at birth, and has cerebral palsy. Simi, who is Runu’s cousin, also has cerebral palsy

“When we arrive at people’s homes, they are very welcoming,” says Roy. “They say they are happy to see us because they are finally getting some respect.”

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