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Daily Record
Daily Record
Health
Charlotte Hadfield & Hannah Mackenzie Wood

Dad given devastating 'twitching arm' diagnosis just months after birth of baby girl

A dad had his world "turned upside down" after being given a heartbreaking diagnosis just months after the birth of is daughter.

Tony Duncan, from Broadgreen, first realised something was amiss back in February when a work colleague spotted that he was experiencing "rapid twitches" on the back of his right arm.

According to the Liverpool Echo, the 41-year-old attended a GP appointment and underwent various tests over six months following his referral to the Walton Centre.

As he waited for results, Tony started experiencing more twitches in both his arms and legs as well as his jaw.

His voice also started to deteriorate, and he was soon left unable to sing to his baby girl.

After test results came back, Tony was told the devastating news that he had Motor Neurone Disease.

Tony said: "When we were given the news we were devastated, my wife and I both broke down. My first thought then was my soon to be one year old daughter."

Motor neurone disease is a rare condition that affects the brain and the nervous system.

There's no cure for MND, and it can significantly shorten life expectancy, but some people live with it for many years.

Tony said: "My neurologist has told me that over time, all of my muscles will become weaker and suffer wastage, leading to a loss in my mobility until I become paralysed.

"Breathing and swallowing difficulties are very typical with this condition also. Unfortunately my condition is ultimately fatal."

Tony said he and his wife Kristina, 33, "now feel determined to make the most of the time we have, and make sure our daughter has lots of happy family memories with me."

They have set up a go fund me page with the hope of raising money to go towards medical equipment and adaptations that will be needed to their home as Tony's illness progresses.

By sharing his story, Tony also hopes to raise awareness of Motor Neurone Disease and the research that is needed into the condition.

In a message on the fundraising page he said: "I am married to the love of my life and have a one year old daughter.

"Our lives were truly blessed until I was recently diagnosed with motor neurone disease.

"Our lives have turned upside down as we have been told that within the next five years, I will become increasingly disabled and ultimately paralysed. I will shortly be forced into early retirement.

"Any donations that you can make would make a real difference to our lives. If you cannot donate, then all I would ask is that you please share this go fund me instead, thank you very much."

Tony said he was "reluctant" to ask anyone for help at first but described the response to the fundraising page as "incredible."

He said: "It really means so much to me and my family that people want to help us in this difficult time, we can’t thank everyone enough."

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