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William Dunne & Clara Kelly & Laura Lyne

Conor McGregor donates €12,000 to help send one-year-old Dublin girl to US for treatment of rare genetic condition

Thousands has been raised for the life-changing treatment of a one-year-old Dublin girl - with Conor McGregor making a huge donation in support.

The Notorious has donated €12,000 to the cause, which has seen more than €100,000 raised for little Evie who was born in October 2018.

HopeForEvie will see her fly to Virginia for intense treatment with a specialist for a rare genetic condition.

Evie, who is missing a large part of her X-chromosome, was diagnosed in March of this year with a rare condition called microcephaly with pontine cerebellar hypoplasia, and a mutation in her CASK gene.

The condition which stunts the development of Evie’s brain, can cause a wide variety of problems that include a seizure disorder, developmental delays, intellectual disabilities and facial distortions.

With little knowledge of Evie’s condition in Ireland because of its rarity, her parents discovered a doctor in the US that explores the role of the CASK gene in neurological disorders, enrolling their daughter in a four-week programme.

A fundraiser at Crumlin Boxing Club recently raised €12,000 for little Evie, who turned one last Friday, October 18.

And after signed gloves donated by the 31-year-old UFC champion raised €500, McGregor was "cheekily" asked if he would match the club's donation.

Boxing coach Bra Brady said the dad-of-two had "no problem" in matching the sum.

He said: "We got €500 for the gloves and being a bit cheeky I asked if he would match whatever we made and he said it was no problem."

Evie's mum Emma set up a GoFundMe page in June with the aim of reaching a €60,000 goal, however, they have recently smashed the€100,000 mark thanks to Conor McGregor.

All of the money raised will go towards Evie’s therapy, with Emma, Evie and dad, Keith set to jet off stateside on February 13 to the Virginia Tech Carilion Research Institute Neuromotor Research Clinic for the four-week programme.

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