A “miracle boy” who defied the odds after he was born with most of his skull missing has died at the age of five.
Jaxon Buell, who lived in North Carolina in the US, had just 20% of his skull due to a birth defect called microhydranencephaly.
Microhydranencephaly can cause microcephaly and scalp rugae which means Jaxon's head was smaller than normal but that didn't stop him from living life to the full.
Katie Hopkins once cruelly referred to him as 'it'.
The tot captured hearts and defied the odds by thriving and lived to see his first birthday to the shock of medics.
His dad Brandon confirmed his tragic death to WJXT saying: “Jax passed away very peacefully, comfortable in my arms.
"He was surrounded by his parents and his family and enjoyed so much love and snuggles in the final moments of his life and journey with us."
Jaxon was unable to walk or talk, but his parents shared his many milestones on his Facebook page 'We Are Jaxon Strong'.
Updates showed him smiling and appearing to communicate with noises and eye contact.
The page has been deleted since his death.
In the last few weeks of Jaxon's life he was transferred to a hospice as his health deteriorated.
He did not die of a coronavirus-related condition.
Brandon also addressed his son’s death on Instagram, People.com reports.
He reportedly wrote that he would never forget his “beautiful bright blue eyes and his perfect smile.”
He added: “I love you so much, Jaxon. I can’t wait to see you again someday in your perfect form, running and laughing in Heaven.
“Enjoy the head start, son. You earned it by being the most perfect, the sweetest, and the strongest little boy ever.”
Jaxon's parents were advised to abort when the condition was discovered at 23 weeks of pregnancy but chose to give Jaxon a shot at life.
