It's every parent's worst nightmare to hear that your new-born baby might only live for a matter of minutes.
When Chelsea and Greg's son Oscar was taken out of an incubator after being born 'blue and lifeless', doctors thought the new-born would only survive for seconds.
The couple took their son to a special room at Leicester Royal Infirmary where bereaved parents can say goodbye, where Chelsea FaceTimed her mum so she could meet her grandson, however briefly.
Chelsea, 26, told LeicestershireLive: "They said that after taking him off the incubator he would live for minutes or maybe just seconds."
The FaceTime phone call to Sally-Ann, Chelsea's mum, would prove to be the most surreal and joyful call of her life.
She said: "She was in the middle of the Highcross when the call got through to her and as we were talking she saw Oscar open his eyes and she just screamed.
"His eyes were open for the first time and it was so surreal – it felt like a dream.
"I sat on the bed and shook my head like people do in films. It was amazing – the best feeling in the world – but I had to pinch myself."
The doctors got Chelsea to give Oscar some of her own milk for the first time and that perked him up even more.
Oscar was transferred to Rainbows hospice in Loughborough but the doctors kept Chelsea from getting her hopes up too much.
She said: "He was on an end-of-life plan with orders not to resuscitate him - but after three days he was taken off the plan."
Chelsea and Greg took Oscar back to their home in Hamilton, Leicester, and while it hasn’t been the easiest of times, Oscar is able to respond to them and smile and laugh.
"He’s 18 months old now and he’s like a baby aged under three months but he smiles and he laughs and he loves lights, despite being partially blind," Chelsea said.
"He loves his trips to Rainbows – he enjoys hearing new voices and listening to music.
"He really likes being held and he babbles a lot."
Oscar has a life-limiting form of epilepsy and it is unclear how long he will survive.
Chelsea said: "He was in intensive care a month ago and we thought we were going to lose him.
"I don’t know how long I’m going to have with him but while he’s here I feel he should have everything – especially after all he’s been through."
Chelsea and Greg are fundraising to raise money for physiotherapy, with a target of £1,000.
And in February this year Oscar will get a little sister.
Chelsea, who worked as a care assistant before Oscar was born, said: "He’s going to really enjoy having a little sister.
"He’s a bit of a sadist and always laughs at the sound of other babies crying!
"I’m dreading it, having to look after both of them, but he is going to love it."
To donate to the fundraising page visit www.gofundme.com/f/eq25q-oscars-journey
